Community Congresses

The American Association for the Study of Liver Diseases Annual Liver Meeting will be in San Diego, California, in 2024.

Assessments of bone loss and nutritional deficiencies, and lots more.

The AASLD PSC Guidance Support Statement, which includes their stance on access to and insurance coverage of oral vancomycin as a PSC treatment. In part, it reads, “In the absence of a definitive clinical trial, the decision to use an off-label medication should remain between the doctor and the patient … (The lack of such a trial) should not be used as justification to restrict coverage of this treatment if a physician feels it is the right course of action.”

The PSC Partners Statement about the new guidance, which reads, in part, “PSC Partners does not take a position on the use of any specific off-label medication and instead encourages patients to work with their doctor to discuss a treatment plan.” (See the PSC Partners Statement about the Use of Medications Not Approved by the FDA for PSC here.)

Importantly, two future directions proposed in the guidance align with PSC Partners efforts through the WIND Initiative and PROM project. These major research initiatives were launched with support from the PSC community, including some of the authors of this guidance.

American Association for the Study of Liver Diseases

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